Sam is an angel that was brought into my life. Here is our journey back home...

Sam is an angel that was brought into my life. Here is our journey back home...

Thursday, February 9, 2012

Congenital Heart Defect Week

In honor of my fellow baby loss mothers, my niece, my dear friend and her son Braden, and a friend that recently lost her son with a CHD, I need to share some awareness about CHD. CHD effects 1 in every 100 births. There is an adorable picture of my niece with a cute lil' onesie on saying, "I'm 1 in 100", I wish I could get my hands on it. I would love to share my niece's story but I am not sure my brother would approve. Let's just say she truly is a miracle in the making. This little girl fills you with sunshine the minute you lock eyes with her. She has endured more than most children her age and has conquered more obstacles than we ever thought possible. She is a true inspiration!

There are tons of outlets out there if you or someone you know has CHD or has a baby/child with CHD. Mended Little Hearts has been a help to many families I know. Here is a page on their site that has a load of resources.

Francesca at Small Bird Studios has had a guess blogger on the other day to share awareness on this matter. Click on this link and take five minutes to read about Cora.

This Valentines Day and all through February, don't just think of the cute lil' hearts that cover cutesy cards and decorations, think about the hearts that are scared, broken, and mended and spread the word about CHD.

Congenital Heart Defect Week February 7-14.

Heart of Gold Charity in Braden Petska's memory.

2 comments:

  1. Your story is heartbreaking. Every baby loss story is. I just want to give you a big hug. We lost our daughter Leia Sky at 35 weeks. We are trying again and pray that when we have another daughter her middle name can be Leia. I really like your blog been reading for a while. Just thought I'd finally speak up. Please feel free visit mine www.letterstoleia.ca

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  2. Thank you so much for reading and speaking up. I always love to hear from my readers. I am so sorry to hear about Leia Sky. My heart breaks every time I learn of another story similar to mine. Our babies are gone way too soon. Much love and many thoughts to you. xo

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